This support group is created by patients for patients in the belief that together we can make a difference in the quality of our lives.

A note from Denise

Recently I was asked what I would want to tell someone recently diagnosed with dystonia.

First and foremost I would say that I am sorry that anyone has dystonia. It is the biggest challenge I have ever needed to face. It affects so much of what I attempt to do. However this huge challenge has also given me the greatest learning experience of my life. I have learned that it is possible to train my mind and my body to function at a higher level than I ever thought possible; I have learned to ask questions and gain deep appreciation of the medical community's willingness to share their knowledge; I have learned to let go of my ego, and as I accept myself I find that others accept me willingly; I have learned that I cannot find success alone...it takes the help of a team of doctors and therapists and teachers and loving friends and family; I have learned to trust myself and communicate my thoughts more freely and in so doing I gain knowledge from others and greater understanding of myself; and I have learned to let go of "wants" because all that is important is being present in this moment.