This support group is created by patients for patients in the belief that together we can make a difference in the quality of our lives.
Websites and Information that our members like
Dystonia Websites
Bachmann-Strauss Dystonia & Parkinson Foundation
Dystonia Medical Research Foundation
National Organization for Rare Disorders
Dystonia Chat Groups
American Dystonia Society Bi-Weekly online support chats
Dystonia Medical Research Foundations Online Support
Dystonia research studies
Dystonia Medical Research Foundation
Other Dystonia Support Groups in Washington
Dystonias - Focal
Blepharospasm, a dystonia affecting the eyes
Benign Essential Bleepharospasm Research Foundation
Blepharospasm clinical research trials
Cervical Dystonia, a dystonia affecting the neck
National Spasmodic Torticollis Assoc.
Dysphonia, a dystonia affecting the vocal cords
National Spasmodic Dysphonia Association
Dystonia Videos
Publicity about Dystonia in the Media
Megan Sargent, Living with Dystonia by Julie Krug, Spokane Spokesman Review
Denise Gibson, Support for the Silent by JoNel Aleccia, Spokane Spokesman Review
CBS segment about twins with Dystonia
Dilbert Cartoonist and Dystonia, Spokesman Review
The Doctors TV Show (Search dystonia)
Dysphonia - Vocal Concerns, Spokesman Review
Oprah Health show - Dystonia-Dr-Oz-Explains-Causes-and-Symptoms
Oprah Mystery Diagnosis show - Dystonia - Years-of-Pain
Today Show about Dopa Responsive Dystonia Mimicking Cerebral Palsy (Also search dystonia)
Additional Websites & Information that we find interesting
(Some of these are great articles from the Northwest Parkinson's Foundation, but their content might relate to dystonia.)
Bicycling Across America with Dystonia
Books
The Brain that Changes Itself (for learning more about the brain)
My Stroke of Insight (for learning more about the brain)
Relaxercise (a book for learning gentle exercise)
Total Relaxation (includes a cd for listeningto guided relaxations)
Yoga for Movement Disorders (good for developing a home yoga routine)
Brain Training Programs
Posit Science Research and Brain Training Products
CPR
Watch this short Continuous Compression CPR video to learn this life saving technique
Exercise
Dr. Giroux - Wellness for a Healthier Brain
Sit and Be Fit Exercise Exercise Program (shown M-F at 11:30 in Spokane on KSPS TV)
Walking Maps - in and around Spokane
Health Care
Affordable Primary Care through Spokane Agencies
Community Health Association of Spokane
Spokane Regional Health District
Home Care
Massage Therapy
Structural Integration Therapy
Structural Innovations in Spokane
Video (translated) to help you understand why Fascia is important
Finding a Practitioner
Hellerwork Structural Integration
Rolf Guild for Structural Integration
Medical Terms
Glossary of Medical Terms by WeMove.org
Meditation
Spokane Vipassana Meditation Community with Mary Webster
Mindfulness Meditation with Dori Langevin
Relaxation and Stress Management
St. Luke's Rehab. Inst. Biofeedback/Outpatient Psych
Wild Devine - great web products for relaxation
Seating & Mobility
American Seating & Mobility - Wheelchairs, ramps and more
Kersey-Mobility - Wheelchair Vans & Scooter Lifts
Obus Forn - chair back cushions, back supports and more
Self-Care, a Roadmap
Roadmap to Self Care (written for Parkinson's Patients, but applicable for those of us with Dystonia, too)
Sensitivity
The Highly Sensitive Person, by Julie Krug, Spokane Spokesman Review
Therapy - Botulinum Toxin Therapies for dystonia
"This I Believe" by Dr. Bruce Becker
This I Believe by Dr. Bruce Becker - The Life Force Flower
Yoga Instruction
Sunflower Yoga, an Iyengar yoga studio serving Spokane and Spokane Valley
Other Websites of Interest (Not about Dystonia)
Cerebral Palsy Guide: Helping Children
Cerebral Palsy Group: Free Educational Information and Support
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