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This support group is created by patients for patients in the belief that together we can make a difference in the quality of our lives.

Please join us at our meetings. The cost is FREE. Please try to rsvp if at all possible. We look forward to seeing you!

MEETING DATES FOR 2017

EDUCATIONAL MEETINGS:
This year we will meet the 2nd Friday of March and October.
Meeting will be held at St. Lukes Rehabilitation Institute, 711 So. Cowley St., (location map), Spokane

  • Friday, March 3, 2017
    2:00 - 3:30 p.m.
    Room 200 (adjacent to Information Desk inside Main Entrance, at south end of complex)
    St. Lukes Rehabilitation Institute. 711 S. Cowley St., Spokane WA

    Dystonia - A Neurologist's Perspective
    Jason Aldred, M.D., Movement Disorder Specialist, of Northwest Neurological, PLLC
    Back by popular demand, Dr. Aldred will speak to us about dystonia. We all have questions about this disorder as we face day-to-day trials. As a movement disorder specialist, Dr. Aldred will give us perspective on dystonia and bring us an up-date on the medical research being discovered.
            Dr. Aldred joined Northwest Neurological in April 2014. Previously, he completed a neurology residency at Oregon Health & Science University (OHSU) where he served as neurology chief resident. He continued training by completing an additional two-year fellowship in Parkinsonís disease and movement disorders at the Parkinsonís Disease Research, Educational, and Clinical Center (PADRECC), a collaborative program between the Portland VA and OHSU. During this time he received formal training in botulinum toxin injection techniques, patient selection for deep brain stimulation (DBS) and postoperative DBS programming and management, and advanced medication management for movement disorders. Dr. Aldred also completed formal training in clinical research through the Human Investigators Program (HIP) at OHSU.
            Currently Dr. Aldred is the director of the Movement Disorders Clinic and Deep Brain Stimulation program at the Inland Northwest Parkinson Center of Northwest Neurological. He was appointed clinical assistant professor of neurology at the University of Washington and teaches neurology to medical students during clinical rotations at Northwest Neurological.

  • Friday, October 13, 2017
    2:00-3:30 p.m.
    Room 200 (adjacent to Information Desk inside Main Entrance, at south end of complex )
    St. Lukes Rehabilitation Institute. 711 S. Cowley St., Spokane WA
    Deep Brain Stimulation for Dystonia
    Presented by Danielle Wald, Psy.D., Northwest Neurobehavioral Institute and
    Jonathan Carlson, M.D., Ph.D., Inland Neurosurgery & Spine

    Deep brain stimulation surgery has shown remarkable success for those of us with dystonia. The idea of brain surgery is intimidating. But it is important to learn and understand all the options that are available in our arsenal as we face a life with dystonia.
            Drs. Carlson and Wald will help us navigate the pros and cons of DBS, explore the components, and give us a look into the miracle of the brain and how this marvelous procedure is changing the lives of so many people.
            Dr. Carlsonis a Neurological Surgeon with expertise in DBS and surgery of movement disorders.
            Dr. Danielle Wald, is a licensed psychologist and clinical neuropsychologist who will enlighten us about the psychological aspects of DBS surgery.

OTHER PROGRAMS OF INTEREST

Speech Therapy
Join the Parkinson’s Speech Therapy group at EWU to see if it helps with dystonia as well.
Thursdays, 1:00-1:50 pm
University Hearing & Speech Clinic
310 N. Riverpoint Blvd., #128
It’s FUN!
Cost is Free. Metered parking lot outside the door.

Dance Therapy Group:
The Parkinson's Resource Center of Spokane has developed a wonderful dance program based on the Mark Morris Dance Program in New York. We are invited to join this program to help ourselves develop better balance, freedom of movement, social interaction, and confidence while discovering the joy of dance.
This program is easy for anyone to do (since our warm up exercises are done while sitting on chairs), and dance is an incredibly fun way to exercise. You do not need a partner. The teacher keeps you laughing, and the pianist is top caliber — he used to be an accompanist for the Martha Graham dance troupe!
1st and 3rd Saturdays each month
2nd and 4th Fridays each month
(except no classes during January and the summer months from June through August)
11:00 a.m.-12:15 p.m.
Gonzaga Theatre Dance Studio
corner of Desmet and Pearl
Cost: Free, but small contribution is always welcome

Vipassana Meditation with Mary Webster
Every Wednesday 5:30-6:30 p.m.,
Buddhist Temple, 927 South Perry St., (location map), Spokane
Taught by Mary Webster of the Spokane Vipassana Meditation Community.

Learning meditation can help us focus our thoughts and decrease anxiety as we confront dystonia. It can also help in every aspect of our lives.
Cost is FREE, but a gift of thanks to the teacher is always welcomed.
Family/friends welcome.

Mindfulness Meditation with Dori Langevin
Mainstream-Mindfulness
Visit www.mainstream-mindfulness.com for when and where these meditation classes are available.
Learning meditation can help us focus and calm anxiety.

Yoga Instruction by offered by 3 great studios

Sunflower Yoga, an Iyengar yoga studio serving Spokane and Spokane Valley

Harmony Yoga

South Perry Yoga

 

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A support group of the Dystonia Medical Research Foundation and the National Spasmodic Torticollis Association.
With thanks to the Dystonia Medical Research Foundation, the National Spasmodic Torticollis Association, as well as St. Lukes Rehabilitation Institute.