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This support group is created by patients for patients in the belief that together we can make a difference in the quality of our lives.

The following are resources that our members recommend

Neurologists in Spokane who treat Dystonia

Jason Aldred, MD, Neurologist, Fellowship trained movement disorder specialist, Spokane,
Northwest Neurological
610 S. Sherman Ave., #201, Spokane, WA 99202
Phone 509-458-7720
About Dr. Aldred
www.nwneurological.com

David Greeley, MD, FAAN, Neurologist, specializing in neurodegenerative diseases, Spokane,
Northwest Neurological
610 S. Sherman Ave., #201, Spokane, WA 99202
Phone 509-458-7720
www.nwneurological.com

Salil Manek, MD, Neurologist, Fellowship trained movement disorder specialist, Spokane
Rockwood Main Clinic
400 E. 5th Ave., Spokane, WA 99202
Phone 509-838-2531
www.rockwoodclinic.com

Additional Physicians in Spokane who treat Dystonia

Karen Stanek, MD, Physiatrist (rehabilitative medicine), specializing in spasticity
Northwest Medical Rehabilitation
1315 N. Division
Spokane, WA 99202
Phone 509-624-0908
www.nwmedicalrehab.com

Physicians outside of Spokane who treat Dystonia

WASHINGTON

MOSES LAKE
Enrique Esnard, MD, Neurologist, Fellowship trained movement disorder specialist
Confluence Health, Moses LakeClinic
840 E. Hill Ave.
Moses Lake, WA 98837
Phone: 509-764-6400
Fax: 509-764-6480
www.wvmedical.com

SEATTLE AREA
Pinky Agarwal, MD, Neurologist, Fellowship trained movement disorder specialist
or
Daniel J. Burdick, MD, Neurologist, Fellowship trained movement disorder specialist
Booth Gardner Center
13030 121st Way NE, Suite 300
Kirkland, WA
425-899-3123
www.evergreenhospital.org

Allen Hillel, MD, Specializing in Laryngology & Otolaryngology (for Dysphonia)
University of Washington Medical Center
Laryngology & Otolaryngology Head and Neck Center
1959 NE Pacific Street
Seattle WA 98195
(206) 598-4022
www.uwENT-headneck.org

Patrick Hogan, III, MD, DO, Neurologist, Fellowship trained movement disorder specialist, Puget Sound
Puget Sound Neurology and Integrative Health Center
5006 Center Street, Suite U, Tacoma, WA 98409
Phone 253-284-4488
www.psneurology.com

Susie Ro, MD, Neurologist, Fellowship trained movement disorder specialist, Seattle
Swedish Neuroscience Institute
550 17th Avenue
Suite 540
Seattle, WA 98122
Phone: 206-386-3880
Fax: 206-386-3882
Redmond Campus
18100 N.E. Union Hill Road
Redmond, WA 98052
Phone: 425-498-2200
www.swedish.org

WENATCHEE, WA

Kelly A. Condefer, MD, Neurologist, Fellowship trained movement disorder specialist
Confluence Health, Wenatchee Valley Hospital and Clinics
820 N. Chelan Ave. (E. side of 3rd Floor in Mares Bldg.)
Wenatchee, WA 98801
Phone: 509-663-8711
Fax: 509-664-4860
www.wvmedical.com

Enrique Esnard, MD, Neurologist, Fellowship trained movement disorder specialist
Confluence Health, Wenatchee Valley Hospital and Clinics
820 N. Chelan Ave. (E. side of 3rd Floor in Mares Bldg.)
Wenatchee, WA 98801
Phone: 509-663-8711
Fax: 509-664-4860
www.wvmedical.com

IDAHO

LEWISTON
Natasha DeMattos
, MD, Neurology, Neuro Surgery, Lewiston
Clearwater Neurosurgery
3326 4th St, Ste 6, Lewiston, ID 83501
(208) 746-2223

BOISE
Lauren Seeberger
, MD, Neurologist, Fellowship trained movement disorder specialist, Boise, ID
Idaho Elks Rehabilitation Hospital Movement Disorders Center
600 N. Robbins Rd.
Boise, ID 83702
208-489-4599

ARIZONA

Anthony Santiago, MD, Neurologist, Fellowship trained movement disorder specialist,Phoenix, AZ
Mohammed Ali Parkinson's Center and Movement Disorder Clinic
Barrow Neurological Institute
240 W. Thomas Rd., Suite 301
Phoenix, AZ 85013
800-227-7691 (Ask for the Movement Disorder Clinic)
602-406-6262
www.thebarrow.org

COLORADO

DENVER, CO
Monique Giroux
, MD, Neurologist, Fellowship trained movement disorder specialist, has opened an exciting new movement disorder clinic in the Denver, Colorado area.
Dr. Giroux has been the medical director of the Northwest Parkinson's Foundation, where she offers an extrordinarywellness wesite which gives information, forms, meetings, etc. The website is designed for people with Parkinson's, but has excellent information for those with dystonia as well.
http://www.nwpf.org/wellness/default.aspx
weekly blog http://nwpfcommunity.wordpress.com/
Denver clinic, Center for Movement

SOUTH DAKOTA

SIOUX FALLS, SD
William Rossing
, MD, Neurologist, Sioux Falls, SD
Neurology Associates, PC
1100 E. 21st St., Suite 506
Sioux Falls, SD 57105
605-332-1610

Other physicians that we recommend

Audiologists

Lesly Loiseau, AuD
Deaconess Medical Bldg.,
801 W. 5th, Suite 112
Spokane, WA 99204
509-835-5111
www.spokanesudiologyclinic.net

Chiropractors

Kelli Pearson, DC, DABCO
Pearson & WearyPain Relief Clinic
1410 N. Mullan, Suite 200
Spokane, WA
509-927-8997
www.pearsonweary.com

...and Neuro-Chiropractors doing interesting work with dystonia patients

Glen Zelinski, DC, DACNB, specializing in Chiropractic Neurology
Integrated Physicians Group
4035 Mercantile Drive, Suite 112
Lake Oswego, OR (outside Portland)
503-203-1177
www.integratedphysicians.com

Ted Carrick, DC, PhD
Life University School of Chiropractic
Neorology Clinic and Video(to email them)
1269 Barclay Circle
Marietta, GA 30060
(800) 543-3202
(770) 426-2600
also see article about Dr. Carrick's work: Surviving Dystonia: A Chiropractic Success Story

Dermatologists

Benjamin Hsu, MD
Northwest Dermatology
Northpointe Medical Park
757 E. Holland Ave.
Spokane, WA 99218
509-444-6367
www.northwestderm.com

General Practitioners

Dr. Jeffrey Clode, MD
Physicians Clinic
Sacred Heart Medical Center Building
820 S. McClellan, Suite 500
Spokane, WA
509-353-3950
www.physiciansclinicspokane.com

ENT

Neil Giddings, MD, Specializing in Otology & Neurootology
Spokane Ear, Nose & Throat Clinic, P.S.
217 W Cataldo
Spokane, WA 99201
also, on North side
5901 N. Mayfair
Spokane, WA 99208
509-624-2326 (for both offices)
www.spokaneent.com

Omar Husein, MD, specializing inOtorhinolaryngology, Facial Plastic & Reconstructive Surgery, Head & Neck Surgery
Spokane Valley Ear, Nose Throat and Facial Plastics
1424 N. McDonald, Suite 101
Spokane Valley, WA 99216
509-928-7272
www.spokanevalleyent.com

Al Pokorny, MD, specializing in General Otolaryngology, Sinus & Allergy
Spokane Ear, Nose & Throat Clinic, P.S.
217 W Cataldo
Spokane, WA 99201
also, on North side
5901 N. Mayfair
Spokane, WA 99208
509-624-2326 (for both offices)
www.spokaneent.com

Psychologists

Dr. Darelle Volwiler, PhD, Clinical psychologist
Volwiler Counseling
910 N. Washington, Suite 211
Spokane, WA 99201
www.volwilercounseling.com

Ronald Klein, PhD, Clinical Psychologist, Nueropsychologist
601 W. Main, Suite 1011
Spokane, WA 99201
509-838-1285

Jennifer Van Wey, PsyD, Clinical Psychologist, Neuropsychologist
Northwest Neurobehavioral Institute
421 W. Riverside Ave, Suite 310
Spokane, WA 99201
509-456-3600
www.spokanebrain.com

Social Security Disability Insurance Agents

Fred Johnson
Fred has dystonia himself and has helped many people with dystonia get insurance.
1-800-536-0454

Therapists that we recommend to help you deal with dystonia

Massage Therapists

Kevin Lucas, LMP, BCSI - Structural Integration therapapist (gently releases the fascia binding to muscles)
Structural Innovations
12929 E. Sprague Ave., Suite 104
Spokane Valley, WA
509-891-2368
www.structuralinnovations.us

Andrea Marie, LMP - Cranial Sacral Therapy, Visceral Manipulation, Lymphatic Drainage
Inspiral Integrated Bodywork
2027 W. Indiana
Spokane, WA 99205
509-624-5973

Physical Therapists

Brian Cronin, MPT, CSCS, Owner
U District PT
Downtown
730 N. Hamilton St.,
Spokane WA 99202
509-458-7686
or
Liberty Lake
1334 N. Whitman Lane, Ste 100
Liberty Lake, WA 99019
509-927-1222
or
Spokane Club
1002 W. Riverside
Spokane WA 99201
509-459-4574

Christy Frazier, P.T., D.P.T.
Apex Physical Therapy
11111 E. Westview Ct.
Spokane, WA 99218
509-465-1749

BEND, OREGON
Carol Ann Nelson, P.T.
Destination Rehabilitation
Carol Ann Nelson is a PT who started Destination Rehab as a nonprofit to help people with neurological disorders regain skills or learn new ones out in the community -- including fun things like hiking, kayaking, etc!
Bend, Oregon
541-241-6837
Burke Selbst, P.T.
Focus Physical therapy
OLD MILL CLINIC
(Inside Recharge Sport)
550 SW Industrial Way
Suite 130
Bend, OR 97702
541-385-3344
or
EASTSIDE CLINIC
1239 NE Medical Center Dr.
Suite 200
Bend, OR 97701
(541) 706-9385

Speech Therapists

Doreen Nicholas, MS, CCC-SLP, MHPA,
Senior Lecturer and Clinical Director of the
University Hearing and Speech Clinic at EWU
EWU Riverpoint Campus, in the Health Sciences Bldg.
509-828-1323
www.ewu.edu/CSHE/programs/communication-disorders

Lynette Norton, CCC-SLP
Providence Holy Family Hospital
Rehabilitation Services
5633 N. Lidgerwood
Spokane, WA 99208
509-482-2193
www2.providence.org

Support & Help Groups

Puget Sound Dystonia Support Group

ALSSO for Lou Gehrig's Disease, 509-467-8761 in Spokane

Ataxic Cerebral Palsy Help (wesite)

Parkinson's Resource Center

Other Local Resources

Hair Sylists

Frenz Hair Design
James & Wendy(owners)
(They understand the movements caused by dystonia & are happy to work on our moving heads!)
1111 N. Normandie
Spokane, WA 99201
509-326-5123

Help

Department of Social & Health Services

Elder Services

Lotsa Helping Hands Community

Spokane Resources Directory (from Aging & Long Term Care of Eastern Washington website)

Meditation

Spokane Vipassana Meditation Community with Mary Webster

Mindfulness Meditation with Dori Langevin

Meals on Wheels

Meals on Wheels Spokane

Relaxation and Stress Management

St. Luke's Rehab. Inst. Biofeedback/Outpatient Psych  

Spoon that Counteracts Hand Tremor

http://www.npr.org/blogs/health/2014/05/13/310399325/a-spoon-that-shakes-to-counteract-hand-tremors

Tai Chi & Qigong

Bryan Knack, Ph.D., Ma,D.Sc.
Northwest Tai Chi & Qigong
2802 N. Monroe
Spokane, WA 99203
509-499-1264
www.NWTaiChi.com

Elwyn Lapoint, Sifu, Professor Emeritus in Anthropology at EWU
South Perry Yoga at the Buddhio
915 S. Perry
Spokane, WA 99223
509-443-6241 (Shawn)
www.southperryoga.com

Transportation Services for People with Disabilities

Spokane Paratransit

Spokane Transportation Resources List (from Aging & Long Term Care of Eastern Washington website)

Wellness Website

Monique Giroux, MD, Neurologist, Fellowship trained movement disorder specialist, Seattle
Dr. Giroux is the medical director who offers an extrordinarywellness website which gives information, forms, meetings, etc. The website is designed for people with Parkinson's, but has excellent information for those with dystonia as well.
http://www.nwpf.org/wellness/default.aspx

Wheelchair Vans and Scooter Lifts

Kersey-Mobility Spokane

Yoga Instruction

Sunflower Yoga, an Iyengar yoga studio serving Spokane and Spokane Valley

Harmony Yoga

South Perry Yoga

facebook

A support group of the Dystonia Medical Research Foundation and the National Spasmodic Torticollis Association.
With thanks to the Dystonia Medical Research Foundation, the National Spasmodic Torticollis Association, as well as St. Lukes Rehabilitation Institute.